I, too, dislike it.

Listening to this podcast to feed my growing, obsessive phobia that I’m becoming EmD… but this one just makes me mad. How reductive. Much as the biographer says again and again that nothing can be proved and that the epilepsy theory is one of 18 chapters of her book, the relationship between the brain and art is so incredibly complicated that no amount of hedging will stop this loose theory from becoming mingled with the real, emotional, artistic history of her life.

Maybe this author’s voice just annoys me. So fragile. I want great biographers to be boisterous and excitable.

I have one hour to figure out how to deal with this.

Got an email from my boss last night describing a plan I’d made to follow up with a donor/donation “crazy.” I have worked with said boss long enough that he should know better, especially because he knew I was coming in late today because I had to schedule an effing last minute psych appointment.

Granted, it was a plan that fell notably outside of our usual strategy for dealing with these things, and I had asked him for permission to spend half a paid day on a project. So it’s more than ok that he said “no,” expressed misgivings, wanted to talk it through, and so forth. But an all caps email including the word CRAZY?

He gets in at noon, and before then I have to figure out how to broach this in a way that:

  1. Does not get me fired for being “crazy” or “uppity” or “young and opinionated” or “female,” whichever of those things turns out to be the one that Management actually finds threatening.
  2. Does not result in losing this donor, who is the key to one thousand things I want to accomplish for the development of this company, not to mention a really nice guy. And
  3. Does not end with me cursing, storming out of any enclosed area, or getting physically violent, which was my visceral reaction to getting the email last night.

Wish me luck, team.

The 1990s was a period when our efforts to help other countries with money and aid began to seem impossibly complex and fraught. Book after book took to task humanitarian efforts for beurocratic waste, having shortsighted goals, and encouraging dependence. This crisis of confidence in the humanitarian community was, Pupavac argues, a reflection of a deep post-cold war uncertainty at home. We had become, she writes, “bereft of convictions and disposed to introspection… The erosion of previous political or communal affiliations had not resulted in a vigorous individualism, but anxious insecure individuals.” When we looked out at the violence and hardship in the rest of the world and knew that our psychological assistance was desperately needed, we may have been simply projecting our own post-modern insecurities.
Ethan Watter, Crazy Like Us
We should worry about this loss of diversity in the world’s differing conceptions and treatments of mental illness exactly the same way we worry about the loss of biological diversity in nature. Modes of healing and culturally specific beliefs about how to achieve mental health can be lost to humanity with the grim finality of an animal or plant lapsing into extinction. And like those plants and animals, the diversity in the human understanding of the mind can disappear before we’ve truly comprehended its value.
Crazy Like Us
Dumb things I should stop doing:
  • Using the phrase “close enough for government work” in conversation with government officials.
  • Saying/writing things in my official capacity as [Person at My Arts Organization] about how it is NOT OK to continue running programs for kids on the Spectrum without bringing their parents and/or other adults with autism to the table.
  • Similarly: using the phrase “pulling an Autism Speaks.”
  • Making assumptions about women in the arts fundraising community being gay/Jewish. But come on, there has to be such a ridiculous amount of overlap! Especially in New York!
  • Posting on my stupid blog instead of writing my millions of pages of grants, this will eventually get me fired.

PS Keyser’s mom really is the best, she just sent me another email about my chart and it’s the best email ever. And I don’t say that often. Well, that often. Except when it involves former teachers with whom I might have some sort of delusional love connection. DINAH GO WRITE YOUR GRANTS.

First off let me say: I do not understand the relevance of this headline to the article it accompanies, and don’t particularly appreciate its implications or sentiment.

But onto the meat of the piece, which is actually about Behavioral Optometry, a small branch of medicine that attempts to treat common childhood learning issues such as ADHD, dyslexia, and autism through visual therapy. These doctors believe that a lot of kids are misdiagnosed, and their issues with reading and communicating actually boil down to eye problems, trouble with visual tracking, and other non-psychological optics issues.

There’s a lot going on in this article. Lots of hand-wringing about over-medicated kids, and the converse hand-wringing from parents who don’t want their kids diagnosed with a learning disability. There’s the medical community’s typical knee-jerk response to malign nontraditional forms of treatment, and there’s an actual dearth of scientific evidence for the efficacy of these treatments.

As long as the behavioral optometrists are working from anecdotes, allow me to throw in a few of my own:

  1. My personal academic achievement improved significantly when I finally got glasses, as did my hand-eye coordination and frequent headaches.
  2. Dotcom was wearing glasses with the lenses reversed, leaving the wrong prescription in each eye, for like two years. She got new specs recently and I feel like she’s a different person, and certainly less sickly.
  3. I have been reading a lot about EMDR treatment (Eye Movement Desensitization and Reprocessing) as a tool for psychotherapy.  In a nutshell, the doctor uses stereo headphones or flashing lights or small hand-held vibrators to rapidly, repeatedly stimulate one eye and the associated brain hemisphere and then the other. Nobody seems to be able to offer a good explanation for why it speeds up the psychoanalysis process of memory recall and catharsis so well, but according to nearly all its practitioners, it does. EMDR is similarly snubbed by the mainstream medical community.

What I’m getting at, basically, is that it doesn’t seem like rocket science that vision issues would be intimately tied to psychological issues. Furthermore, the article seems to completely ignore the possibility that there’s a feedback loop between visual and psychological issues: our brains are extremely plastic, so it needn’t be mutually exclusive to say “Kids with learning disabilities have characteristic patterns on neurological scans” and “Behavioral therapy can help reprogram troubled kids.” The body/brain divide paradigm perpetuated by this article is silly, and ignores a whole pile of research and common sense what says chosen behaviors and thought patterns have the potential to change brain chemistry.

And then there’s this quote, which is a half-hearted nod to something significant and maybe similar to what I’m talking about:

Some doctors suspect that what really lies behind parent and optometrists’ reports of vision therapy’s success is something called the Hawthorne effect — the fact that many problems, and mental-health problems in particular, tend to get better when they receive intensive positive attention of pretty much any kind. Working with a warm and caring specialist, getting extra parental attention, concentrating on skills that can be improved (even if it’s just a matter of performing better on repetitive tests) is self-reinforcing. Under these conditions, you can certainly see great “vision” results in kids who, physicians say, didn’t have anything wrong with their eyes in the first place.

Treating these kids with vision therapy can hardly hurt, bank accounts notwithstanding. And until we can remove the stigma from psychological disorders, one could argue that treating them for a physically-rooted ailment is less harmful to their self-image than the alternative. But really, talking about these treatments as if they exist in separate worlds makes no sense. It’s one kid, with one brain and one body and one challenge to conquer.

Finally, I would like to assert that articles like this prove that it is utter bullshit that vision insurance is a separate entity from health insurance. Same with dental. I know, I know, sour grapes, Dinah. But it’s all my body and I want to be able to take care of it.

abbyjean:

Federal minimum wage does not apply to everyone. Read the fine print on the poster hanging in most low-paying workplaces, and you’ll find two important exemptions: “employees under 20 years of age may be paid $4.25 per hour during their first 90 consecutive calendar days of employment with an employer,” and “certain full-time students, student learners, apprentices and workers with disabilities may be paid less than the minimum wage under special certificates issued by the Department of Labor.” These loopholes leave crucial populations — especially teenagers, students and disabled workers — unprotected by minimum wage requirements. Demand a change.

Yeah… that’s not ok. Let’s take some of our culture’s most vulnerable, least enfranchised groups, and make it legal to not pay them fairly for their work. Do not get it.

Injured duckling helps teach wheelchair boy to walk, by Richard Smith 11/02/2010, mirror.co.uk

The four-year-old suffered a stroke as a baby and developed cerebral palsy. Doctors told his mum Becci he’d never be able to stand on his own two feet.

But he began studying the way pet duckling…

Go go go read this story. Ducklings to make your day.

Victories, small and large

Small: convinced my boss we need to reference LGBT and disability diversity in our inclusion statement. Handed him pages from the blog of a job applicant who used the word “faggot” and phrase “so gay” unironically and often, and told him I would not work next to such a person. He heartily agreed.

Large: $40K grant submitted yesterday, $72k grant will be submitted before I leave the office today. Then it is all Hamlet & reviewing all the time. And, you know, a return to normal levels of mucking about on the web.

Today’s disability reporting Fail goes to my alma mater, which manages to make sweeping generalizations about people with a wide range of disabilities, describe the suspected underlying genetic cause as “what went wrong,” and capitulate to the popular nomenclature of “Fragile X Syndrome” to describe said genetic cause, once again reinforcing language that paints disability as a weakness, liability, and curse.

I have to say, the headline rubs me the wrong way too. It seems to encourage the assumption that the reader is not autistic, and to present a balm for our hurt feelings that autistic folks don’t want to hug us. It reminds me very much of people who are personally offended when they’re asked not to touch service animals, as if they are owed an explanation for another creature’s demand of bodily autonomy.

10 bonus points if you guessed this research was funded in part by Autism Speaks.